Travis's reflections on the way our world could be, ought to be and ought not be, including for our loved ones and others with autism and their families.
Monday, July 23, 2012
A Pathetic Government Failure: Out of Control Gun Violence in America
The Orwellian term “firearms” was invented to
avoid having to refer to “guns” because the latter term includes killing
weapons owned by the bad guys, and the NRA wants us to think of “firearms” as
only being owned by hunters and police officers. Firearms=Good, Guns=Bad They are the same thing. Guns and firearms
are designed to kill people. The NRA also prefers using the term “rounds” to
“bullets.” Rounds=Good, Bullets=Bad The military and police
officers refer to “rounds,” which is a euphemism for bullets. If one looks up “round” in the dictionary,
one discover a round is a single drink all around, or a rung of a chair, or a
cut of beef. One must read down to the
10th definition to find “round” referring to a single shot or
bullet. The bullets shot from guns kill
people. A very small proportion of bullets or shot from guns can also be used to
shoot deer or grouse... a very small percentage of all guns and ammunition.
Elected members
of the US Congress and the presidents of the United States literally cower, whimper and grovel at the feet of
the gun and ammunition industry, unable to do anything to control the
unconscionable distribution, sale and transfer of lethal killing instruments to
anyone in the country who wants one, or two or ten. It
is an utterly appalling spectacle seeing elected officials defending private
ownership of automatic weapons that are routinely used to kill thousands of
people in their own cities and states, for which they have legal responsibility. They
apparently feel insufficient shame to act like responsible human beings. In 2007 there were 12,632 gun homicide
deaths in the US. I’m not sure how many strangulations or paring knife murders
there were in the US, probably less.
Contrary to the
political advertising, this is really all about money not the Second Amendment,
i.e. the gun industry. The industry, includes over 180 companies, has a payroll
of over 10,000 employees who are paid $400 million, and selling approximately
$35 billion in guns and ammunition. By
comparison the US Postal Service employs over 574,000
workers, and congress pays virtually no attention to their views. There are over 250,000 people employed in the
computer industry, and Congress seldom falls to its feet in reverence to them
as it does the NRA. The NRA buys
elections for Republicans and can defeat any Democrat who opposes them, so
Congress rolls over and plays dead as the NRA drives by in their shiny black Caddy's. Just as quail flutter around in circles and flap their wings to draw attention away from their nest when a predator approaches, Congress people flutterer making whimpering vocalizations while pointing at their fellow Congress people claiming they are pro-gun control, so as to divert attention from then when the NRA approaches. Congress, which is supposed to represent
the American people is unwilling to act in the people’s best interest in this life
and death matter. It is utterly shameful .
Only in America could this pathetic scene play out.
Monday, June 18, 2012
Republican Party of Coolidge, Hoover and Romney
Here are the scintillating thoughts of the two presidents who
ushered in and oversaw the Great Depression beginning with the stock market crash in 1929. Their views are indistinguishable from those
of Mitt Romney and most of today’s Congressional Republicans.
CALVIN COOLIDGE (President
1923-29)
“After all, the
chief business of the American people is business. They are profoundly
concerned with producing, buying, selling, investing and prospering in the
world.”
“Civilization and profit go hand in hand.”
“Don't expect to build up the weak by pulling down the
strong.”
“There is no dignity quite so impressive, and no
one independence quite so important, as living within your means”
“Patriotism… means looking out for yourself by looking
out for your country.”
“Industry, thrift and self-control are not sought
because they create wealth, but because they create character”
“When more and more people are thrown out of work,
unemployment results.”
HERBERT HOOVER (President 1929-33)
"The sole function of Government is
to bring about a condition of affairs favorable to the beneficial development
of private enterprise." [This would have come as a very big surprise
to the Founding Fathers]
"We must not be misled by the claim that the
source of all wisdom is in the government."
"The budget should be balanced not by more taxes,
but by reduction of follies." [Like Social Security, education and health care]
"We are now speeding down the road of wasteful
spending and debt, and unless we can escape we will be smashed in
inflation."
"The course of unbalanced budgets
is the road to ruin."
"Free speech does not live many
hours after free industry and free commerce die."
“Blessed are the young for they shall inherit the
national debt.”
In America today, we are nearer a final triumph over
poverty than is any other land.”
“We have not yet reached the goal but... we shall
soon, with the help of God, be in sight of the day when poverty shall be
banished from this nation.”
[The economy tanked
by 42% during Hoover’s Great Depression and at it’s peak unemployment was
24%. Poverty was unprecedented in
American history. Many people lived in "Hoovervilles"
which were groups of shacks. Divorce rate increased 175% and suicides increased
150%. For many Americans, daily life was a struggle for food and shelter.]
“Prosperity cannot be restored by raids upon the
public Treasury.”
“When the war closed
we were challenged with a peace-time choice between the American system of
rugged individualism and a European philosophy of diametrically opposed
doctrines - doctrines of paternalism and state socialism.”
WELCOME TO MITT ROMNEY'S REPUBLICAN PARTY!
Saturday, May 26, 2012
Sins of Our Fathers' DNA
In the Old Testament, God said
to Adam, “Have you eaten from the tree of which I commanded you that you should
not eat?'” (Genesis 3:8-11).” Because of his original sin, Adam (and Eve) were
cast from the Garden of Eden. They were held responsible for Adam’s misdeed.
During and after the World War II era, many social psychologists
attempted to understand the massive religious and ethnic scapegoating of Jews
for the economic plight of Germany following the Treaty of Versailles,
resulting in the torture and murder of millions of innocent people throughout Europe. In
1941 psychologist Neal Miller and his colleagues at Yale University published
an article “The Frustration-Aggression
Hypothesis” proposing that human aggression is the product of a natural
process emanating from thwarting the individual or group from achieving highly
desired goals. People who are frustrated look for someone or something to
blame, whether it has anything to do with their affliction or not. In the 1960s other psychologists conducted a
series of studies demonstrating that exposing animals, from snakes to monkeys
(and even people), to painful stimulation almost invariably elicits aggression directed
at nearly any nearby target, whether that object had anything to do with their
pain, or not. Someone or something must be held responsible and pay for their
suffering.
It should come as no surprise, parents who are experiencing anger and suffering
grief because of their child’s disability, such as autism, look for someone or
something to blame. In the distant past,
birth of a child with a disability was considered God’s punishment for some
presumed sin based on numerous biblical references to visiting punishment upon
the sons for sins of the father. During
the 18th century in England and in the New World, punishment was
directed at mothers rather than fathers, who were typically held culpable for
their child’s disability. Religious
authorities and parents often believed the devil had inhabited their unborn
child resulting in a physical or psychological disability, often from some
presumed maternal sexual transgression. No
bleeding heart, Martin Luther recommended drowning children with disabilities
to rid the devil from their midst. Bruno
Bettleheim’s attempt to censure the mothers of children with autism for their
child’s condition, maintaining the destructive tradition of misdirected
maternal blame.
Many of today’s parents of children with autism are not so different in
that respect from those entirely innocent and blameless animals, upon whom the
experimenter inflicted pain. They lash
out at someone, something, actually nearly anything, to blame for their child’s
condition. Any professional who joins them
in identifying any remotely plausible source of their suffering is viewed with
great favor by grieving parents who see them as legitimate targets, much like
the Inquisitors in England and throughout Europe who identified witches among
their midst to be imprisoned, tortured or killed. There will always be some
professionals who will capitalize on parents’ suffering, offering them false
targets for their anger and fabricated panaceas for their child’s
condition. Those of us who point out there is no connection between the concocted "cause" and their child's autism are considered traitors or worse, for stripping away parents' guilt-expunging fantasy.
Parents are for the moment
able to believe, that at least it was not they, who were to blame. If parents are able to believe there is an
external cause for their child’s autism, they are greatly relieved they are
absolved of responsibility for their child’s disability; it is comforting that they
had not in some unknown way sinned. Who
among us cannot think of something, one thing, one small thing we may have done
during our child’s prenatal or early perinatal period that we can imagine might have caused their
condition? There is that medicine we
consumed or that extra drink at the party or working in the garden spreading pesticide, that used
questionable chemicals. Each and every one
of us conjure up some small potential transgression we think we may have committed, in
our deepest moments of guilt, and flagellate ourselves with psychological
thorns of blame from our child’s disability.
While autism may have multiple causes and subtypes, most evidence points
to genetic errors as the basis for most forms of autism. That is why, though
there have been remarkable advances in genetics research on autism, such
findings seem to offer limited comfort to parents, because in a convoluted way,
some parents still feel responsible for the chemical DNA sequences in their
eggs and spermatozoa and are not able to feel entirely blameless for their
child’s autism. We cling to sins of our father's DNA.
That is also why, despite the fact that at least half of
children with autism can now successfully achieve integration into regular
education by first or second grade after intensive early behavioral
intervention, many parents remain deeply distraught.
Despite their child’s enormous gains and their quality of life vastly
improved, their daughter is not likely to become a successful lawyer or it is
improbable their son will become a architect or doctor. Parents, and even worse, their child, have still
been cast from the Garden of Eden, so there must be some external cause to blame for that profound loss.
So we perpetuate the errors of the Inquisitors and our ancestors’
witchcraft trials in the American colonies four centuries ago. When will parents
be able to forgive themselves and stop blaming others for something neither
they nor others have done?
Monday, May 7, 2012
Autism Therapy: How Much is Enough?
A couple weeks back I posted an entry Treat or Treatment? about
autism therapies. The article discussed the importance of providing demonstratively
effective treatments and not wasting money, your child's time and energy on ineffective methods.
This is a follow-up.
Parents approach the right amount of autism intervention as
they might think about the dose of cough medicine for their child with a
respiratory infection. How many
spoonsful of that pink syrup should I give my daughter on what schedule, to
control the cough and so she gets better? We
specify early intervention dose in hours per week instead of spoonsful. Parents want to know many hours per week of
early intervention their children should receive, on what schedule? They receive a variety of conflicting answers
with no one to help them resolve the conflicts. Most of the people giving advice appear to have an implicit conflict of interest.
Providers of Applied Behavior Analysis early intervention often
quote the figure in the 2001 National Research Council study indicating
children with autism need a minimum of 25 hours per week of one to one
intensive behavioral intervention. Other
ABA providers routinely tell parents they need 30-40 hours per week, as in the
1987 Lovaas study. Other types of
therapists, such as Relationship Development Intervention® and Floortime®
therapists often recommend a few hours per week, and encourage parents to
implement the rest of the intervention naturalistically on their own. Few actually conduct another 20 hours per
week on their own. Bob and Lynn Koegel
who developed Pivotal Response Training®, don’t specify a certain number of
hours per week, but the strategy they suggest suggests that it would involve an
intensity similar to RDI® or Floortime®, i.e. 3 to 6 or 8 hours per week.
This ”intensity” question and the corresponding recommendations,
seem to imply all children with autism spectrum disorders need more or less the
same intensity of intervention in order to make meaningful progress in social
and communication skills and reduction of stereotyped, rigid non functional
routines. That is clearly not the case,
and a carefully reading of the 2001 NRC recommendations indicates that
intensity must be individualized, but it isn’t clear on what basis that will be
done.

I developed the Autism Intervention Responsiveness Scale
(AIRS®) as a tool for deciding what type of intervention or combination of
interventions would be most effective for a given child (Thompson, et.al. 2010,
pages 37-9), which is accurate for a large percentage of children. The result tells you what proportion of DTI,
Naturalistic or Blended Intervention is likely to work best for a given child.
While it’s true on overall, children who receive an average
of more hours as a group, show
greater gains than those with 10 hours or less AS A GROUP, within those
groups large individual differences mandate individualization.
If a high functioning child with Asperger Disorder makes
great gains when receiving 15 hours per week of therapy, would he also make
similar gains at 25 hours per week? He
probably would. So why provide more hours
of therapy than he needs to achieve the goal?

Sometimes other parents whose children could very likely
benefit from 30 or more hours per week of intervention at intake, based on
their presenting profiles, insist their children only receive 10-12 hours per
week. They believe greater treatment intensity
would be stressful, which is seldom the case when properly implemented for the
appropriate child. Studies indicate that
around 75% of the gains that are going to be made for most children with autism
during EIBI come in the first 12 months.
That is why beginning with 10 hours per week instead of 30 hours (if
that is what the child actually needs) may very well lead to far lesser gains
than could have been obtained have more appropriate intensity be used.
Here are some of the consequences of failing to
individualize treatment intensity.

2.
It is waste of money to conduct early intervention
therapy with more intensity than is necessary.
The average cost difference between 15 and 35 hours per week would be
approximately $50,000 per year per child.
3.
Naturalistic therapy focuses on somewhat
different skills than discrete trial intervention, (e.g. choice, spontaneous
social initiations and conversational language) which has implications for
whether more hours of a discrete trial approach is used or fewer hours of a
naturalistic approach or a blended combination, which we have used for most
children. Children with severe
symptoms and mild to moderate intellectual disability often require more intensity with emphasis on basic cognitive skills, and more basic communication skills.
The second complicating factor with treatment intensity is
that almost all parents of children with autism seek multiple services for
their children. There is intensity, and effective intensity. Mom and Dad are usually
told by pediatricians their child needs several therapies, and their friends
strongly urge them to participate in a wide array of treatments, most of them
untested. The average number of
different services per child with whom I worked at the Minnesota Early Autism
Project was five per week. At a
minimum, in addition to early behavioral intervention, most children with
autism also received Speech Therapy, Occupational Therapy, (sometimes both
privately and at school) and Early Childhood Special Education.
Commonly, children with autism were also given lessons or
therapy of various extra kinds, such as Chiropractic, RDI®, Floortime®,
Physical Therapy, private social skills classes, Patterning, swimming, martial
arts, music therapy, horse-back riding, and art therapy or classes. Half of the children with whom I have worked
participated in seven different types of therapy or educational activities or
more per week. Each of these therapists or
instructors interacted with the child in different ways, using different
instructions and different consequences, which at best, is very confusing to
the child, more likely disruptive. It
also creates a crazy quilt schedule involving schlepping the child from
therapist to therapist, sometimes as many as three in a single day.
How would you like being dropped off at school at 8:00am,
then picked up by your Mom from school at 11am, schlepped home for a bowl of
soup and bologna sandwich and a glass of milk for a quick lunch, then hustled
off to Speech Therapy, and then taken to Karate lessons, and then brought home
for a quick supper, and then afterward, Dad takes you to swimming before
bedtime? This sounds more like the child
is being prepared to be a wheeler-dealer hedge fund manager, with an stomach ulcer
and drinking problem, than a child with autism.
Everything we know about the make up of children with autism indicates this
is a very bad idea. Youngsters on the
autism spectrum thrive on predictable, simple routines and consistent social
demands carefully crated to fit with their abilities and traits. They are made anxious by multiple and
unpredictable social demands. But parents fear they are short-changing their
child if they don’t enroll him or her in an array of treatments. As Kurt Vonnegut wrote in Slaughterhouse Five, "So it goes."
When we refer to “treatment intensity,” we need to consider ALL
of the demands being made on a child with autism. Thirty hours of 1:1 behavioral intervention
is supplemented with a minimum of five to fifteen additional hours of various
other therapies or educational activities.
I know of no evidence that this potpourri of multiple
interventions has any beneficial effects for children with autism whatsoever. There have been no studies of outcomes conducted in which
children had EIBI, speech and special education alone, or a comparison group
with multiple therapies. We do know
children with autism benefit from EIBI, some types of speech therapy and
participation in appropriate special education services, but there is almost no
evidence from any controlled studies that any of the other interventions listed
are beneficial. Parents often say, “If we're not sure it will help, why not provide them anyway, just in case?”

Minnesota Early Autism Project http://www.meapkids.org/
Thompson, T (2010) Individualized
autism intervention for young children; Blending naturalistic and discrete
trial approaches. Baltimore: Paul H.
Brookes, Inc
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